Hypogonadotrophic hypogonadism is characterised by a failure to go
through or to complete puberty naturally and can affect both men and women. In most
cases, hypogonadotrophic hypogonadism can be successfully treated by
means of specialised hormone replacement therapy.
Without treatment
people with this condition will very likely be infertile and have an
increased risk of developing osteoporosis or 'brittle bones'. With the
correct diagnosis and treatment, fertility can be achieved in many cases
and the risk of osteoporosis reduced.
One form of hypogonadotrophic hypogonadism (HH) is known as Kallmann
syndrome which has the additional characteristic of an absent or
abnormally low sense of smell. There are a range of conditions that fall
under the category of HH and it is important to receive specialist
medical advice so that the correct diagnosis can be reached and
appropriate treatment given.
Kallmann syndrome and other related HH
conditions are congenital conditions and as such are present from birth.
However the genetic basis of these conditions is not fully understood.
Kallmann syndrome and HH can be inherited through the generations but
it is sometimes very difficult for doctors to predict if this will
occur.
HYPOHH.net is designed to provide with as much to
up to date information as possible and to direct you to other sites
where information and help is available.
Here is a link to a discussion forum set up by a Kallmann Syndrome patient. The message board will allow people to
get in contact with each other and ask any questions they may have, on any topic they wish.
Kallmann Syndrome Forum - click here.
Both groups contain members from around the world. There are members there who would be
happy to answer any questions or just to have a discussion on any matter with
people with the same condition.
Both sites have a files and database section where you can get more information. Both sites are
good way of getting in touch with other people with the same condition, and for families and friends
to get more information.
Yahoo Group - Kallmann's syndrome.