| Section 4 - Living with Kallmann's Syndrome | Next Question |
| 27. | My child has Kallmann's syndrome. How can I help him or her ? |
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You may know from an early stage that your child has Kallmann's syndrome, where there is a family history of the condition, or where an early diagnosis has been possible.
Kallmann's syndrome can be a daunting prospect for both you and your child to come to terms with. The best help you can give your child is to reassure him or her that everything will be OK.
Regrettably, teasing, taunting and bullying are common at school and when this happens to somebody with Kallmann's syndrome, especially a teenage sufferer, this can be an additional source of stress. Be sympathetic and explain that treatment with hormone injections or pills will make a big difference in the end.
"Chatting up" members if the opposite sex can be difficult for any teenager, and many sufferers may feel that they will be rejected because of their more youthful appearance. It is also sometimes hard to gain enough confidence to "come out of your shell" and your child may feel guilty that he is not out enjoying him- or herself like their friends. This can further reduce self-confidence and can cause depression.
Try and make sure that you keep appointments with the consultant responsible for your child's treatment and ensure that you ask all the questions which you need to and understand the answers you are given. After all, nobody understands more about Kallmann's syndrome than an endocrinologist and your child is therefore in very capable hands. |