| Section 4 - Living with Kallmann's Syndrome | Next Question |
| 29. | How can I get in touch with others who have Kallmann's syndrome ? |
|
Kallmann's syndrome is rare; affecting only 1 in 10,000 men and 1 in 70,000 women. In the past, it has been almost impossible for fellow
patients to get in touch with one another because they are few and far between. Some prefer to cope with things on their own, but others find sharing their experiences with fellow sufferers only natural.
There are 2 major web based support groups on the net. The largest group is hosted on Yahoo groups. The international site has over 800 members and contains up to date information and files in its databases section. There are some very knowledgeable & friendly people on the site who have either Kallmann's or HH. They would be very happy to talk about anything, not just Kallmann's related. There is a link to the site on the front page of this site. There is another site hosted by MSN groups, it is called 'Men with
Kalmann's, but anybody is welcome to join and post a message.
|
