Summary

0. Summary and Introduction

Section 1 - Introduction

1. My doctor told me I have Kallmann's syndrome. What does this mean ?
2. When was Kallmann's syndrome first discovered ?

Section 2 - Understanding Kallmann's Syndrome

3. What does an endocrinologist do ?
4. I have heard of "hormones" before, but what are they ?
5. What and where are my hypothalamus and pituitary gland ?
6. What happens during normal puberty ?
7. As a teenager, I didn't go through puberty at all. Why ?
8. How good are my chances of becoming a parent ?
9. Why did my doctor ask me whether or not I had a sense of smell ?
10. Why don't I have a sense of smell ?
11. What has my absent sense of smell got to do with absent puberty ?
12. Others have said that I have long arms and legs. Can this be true ?
13. Will I develop "brittle bone disease" ?
14. What other characteristics of Kallmann's syndrome are there ?
15. Could I have 'caught' Kallmann's syndrome from somebody ?
16. How do I know if I have the inherited form of Kallmann's syndrome ?
17. What is known about 'sporadic' Kallmann's syndrome ?

Section 3 - Diagnosis & Treatment

18. What tests are required before a diagnosis to be confirmed ?
19. Which kinds of treatment will make me go through puberty ?
20. If testosterone and oestrogens are steroids, aren't they dangerous ?
21. If I wanted to, could I inject myself with testosterone ?
22. How can the risk of 'brittle bone disease' be reduced ?
23. Will taking steroids cure my infertility ?
24. Which kinds of specialised fertility treatment are currently available ?
25. What can I do about my inability to smell ?

Section 4 - Living with Kallmann's Syndrome

26. How could Kallmann's syndrome affect my lifestyle ?
27. My child has Kallmann's syndrome. How can I help him or her ?
28. How do I explain Kallmann's syndrome to somebody ?
29. How can I get in touch with others who have Kallmann's syndrome ?
30. How can I find out more about Kallmann's syndrome ?