Once completed, this page will contain links to a number of patient support groups all around the world. If you would like to add a link to this page, please e-mail us, giving the URL and a brief description of the web site.
There a number of patient support groups around the world for patients & families with Kallmann's syndrome.
The largest one is hosted on Yahoo.com and has over 500 members. The site contains files and other information on Kallmann's. It is an active site where members talk about a range of topics, not just Kallmann's syndrome. There are members of the site, both men & women who would be happy to answer any questions you may have.
International site: http://health.groups.yahoo.com/group/kallmanns-syndrome/
There are other sites in German, Spanish & Italian :
Deutsch: http://de.groups.yahoo.com/group/Kallmann-Syndrom/
Espanol: http://health.groups.yahoo.com/group/sidromedekallmann/
Italiano: http://it.groups.yahoo.com/group/sindromedikallmann/
The Pituitary Foundation in the UK also has its own web site with information on a range of pituitary conditions. The Foundation also publishes its own national and local newsletters as well as a national conference every 18 months.
